Liver Disease Resources

Liver Health is Public Health Resources

In response to the need, the Liver Health is Public Health initiative will elevate liver health to its rightful place on the global public health agenda. It will educate the public about liver health and disease prevention and will pave the way for best practices that account for differences in: stage of disease, patient preferences, values, culture, language, geography, and socioeconomic environment.

Liver Health Basics Booklet

Liver Health Education, Support, and Tools

General Liver Disease Resources

Explore GLI's unique curated list of education, support, and tools for patients with liver disease and the people who support them.

• Getting Access to New, Experimental Drugs
  Information for doctors and patients on obtaining access to medicines that are in development, are being tested in clinical trials, or are not yet approved by the FDA. 

• Drug Cost Facts
  Your comprehensive guide to the drug cost ecosystem powered by Biotechnology Innovation Organization.

• National Institute of Diabetes and Digestive and Kidney Diseases
  NIDDK conducts and supports research on many of the most common, costly, and chronic conditions to improve health.

• World Health Organization
  Working through offices in more than 150 countries, WHO staff work side by side with governments and other partners to ensure the highest attainable level of health for all people.

• Lotsa Helping Hands
  Easily organize meals and help for friends & family in need.

• Patient Advocate Foundation
  Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses.

Autoimmune

Primary Biliary Cholangitis

• Living With PBC App
  Empowering you to take an active role in tracking and monitoring all aspects of your primary biliary cholangitis.

Primary Sclerosing Cholangitis

• PSC Partners Seeking a Cure
  PSC Partners Seeking a Cure provides education and support to PSC patients, families and caregivers and raises funds to research causes, treatments and cures for primary sclerosing cholangitis.

Autoimmune Hepatitis

• Autoimmune Hepatitis Association
  Provide support and hope to patients and families affected by autoimmune hepatitis through disease education and provision of research opportunities.

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Cancer

• GLI's Liver Cancer Glossary
  Terms and acronyms you need to know regarding liver cancer.

• American Cancer Society
  If you have liver cancer or are close to someone who does, knowing what to expect can help you cope. Here you can find out all about liver cancer, including risk factors, symptoms, how it is found, and how it is treated.

• Cancer Stories: The Art of Oncology
  This podcast channel features a dramatic reading of stories from terminally ill cancer patient and oncologists from  performed by a celebrity actor or artist, followed by a Q&A session with the author of the article, hosted by JCO consultant editor Lidia Schapira, MD, FASCO.

• Smart Patients - Liver Cancer Community
  Join the Liver Cancer community to learn from other patients and caregivers affected by liver cancer.

• Triage Cancer
  Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.

• Blue Faery: The Adrienne Wilson Liver Cancer Association
  Blue Faery's mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma, through research, education and advocacy.

• Cholangiocarcinoma Foundation
  To find a cure and improve the quality of life for those affected by cholangiocarcinoma.

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NASH/NAFLD

Nonalcoholic Fatty Liver Disease (NAFLD) & Nonalcoholic Steatohepatitis (NASH)

• NASH: Connecting the dots with patients in mind [PDF]
  “Connecting patients to their sense of self‐efficacy and their communities is essential to defeating NASH,” shares Donna Cryer, president and CEO of GLI. Read more about the connections that patients, primary care providers, specialists, policymakers, and advocacy organizations around the world can make to address the epidemic of nonalcoholic steatohepatitis in an October 2020 editorial by Cryer published in the journal, Endocrinology, Diabetes & Metabolism.

• NAFLD & NASH in the Hispanic Population
  NAFLD and NASH have a greater prevalence in the Hispanic population. This infographic describes the genetic and environmental factors putting Hispanics in the U.S. at high risk for fatty liver disease.

• Tandem Crises: Liver Disease and Opioids
  Due to the horrific toll it is taking on lives, communities and our healthcare system, the opioid crisis is a great and immediate healthcare emergency. This infographic describes the relationship between the abuse of opioid medications and liver disease.

• The NASH Education Program - A GENFIT Initiative
  This program raises awareness around NASH and NAFLD by providing information and background on the many aspects of these conditions including disease state, prevalence, risk factors, diagnosis, and treatment.

• Surfing the NASH Tsunami Podcast: Driving The Discussion In Fatty Liver Disease
  In this weekly podcast, drug developers, investors, researchers, and corporate executives wrestle to understand what is happening in the commercial development of NASH medications. Roger Green, MBA, hosts the podcast and GLI's Donna Cryer, JD, is frequently featured as a guest speaker.

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Transplant

• United Network for Organ Sharing
  Our mission is to advance organ availability and transplantation to support patients through education, technology and policy development.

• Organize
  ORGANIZE is a US-based non-profit focused on bringing reform to the organ donation system.

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Pediatric

• Johns Hopkins Pediatric Liver Center
  The staff at the Pediatric Liver Center in the Division of Gastroenterology, Hepatology and Nutrition at the Johns Hopkins Children's Center is committed to offering a comprehensive and compassionate approach to the diagnosis and management of pediatric liver disease.

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Viral

• The National Viral Hepatitis Roundtable
  The National Viral Hepatitis Roundtable (NVHR) is national coalition working together to eliminate hepatitis B and C in the United States.

Hepatitis C

• National Alliance of State and Territorial AIDS Directors
  NASTAD is a leading non-partisan non-profit association that represents public health officials who administer HIV and hepatitis programs in the U.S. and around the world. Our singular mission is to end the intersecting epidemics of HIV, viral hepatitis, and related conditions. We do this work by strengthening domestic and global governmental public health through advocacy, capacity building, and social justice.

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This content is intended to provide helpful health information to the general public. This content is not intended as medical advice for individual problems. Global Liver Institute, including its board of directors and staff personnel, specifically disclaim all responsibility for any liability, loss, or risk, personal or otherwise, which is incurred as a consequence, directly or indirectly, of the use and application of any of the GLI content.